Kerry McCarthy MP met with representatives of the Cystic Fibrosis Trust and families affected by cystic fibrosis at an event at the House of Commons on this week. The event aimed to raise awareness amongst MPs and other key decision-makers about important issues for people with cystic fibrosis and the transplantation process.
1 in 3 of those with cystic fibrosis who are on the transplant list will die waiting. Cystic fibrosis is a life-shortening genetic condition affecting 10,000 people in the UK. New treatments and better clinical care are helping people with cystic fibrosis to live longer but many will still reach a point where their only hope is a double lung transplant.
Kerry McCarthy, MP for Bristol East said:
“I was delighted to attend this event and learn more about some of the issues that affect my constituents living with cystic fibrosis. My eight year-old niece has Cystic Fibrosis so I have some insight of the issues and everyday challenge facing people with the condition and their families and friends. The Cystic Fibrosis Trust is doing a great job supporting people waiting for a lung transplant. The Trust is about to open their consultation looking at the issues affecting the number of lung transplants for people with cystic fibrosis and would urge those with the condition to take part.”
Ed Owen, Chief Executive for the Cystic Fibrosis Trust said:
“Too many people with cystic fibrosis are waiting for lungs that will never arrive and they will die on the waiting list. We are pleased that MPs are showing interest in this issue and we have launched a national consultation during CF Week to look at how transplantation rates can be improved for people with cystic fibrosis.”